Wednesday, March 19, 2014

We saw our oncologist at Cedars today and discussed the options of surgery of the pancreas and radiation of the chest. After looking at all the reports, he looked up and said "Here's what I think you should do ... Go live your life, work, surf." Since the radiation is not likely to offer much benefit and has the potential of causing great harm, he wants us to skip it. He also does not believe the surgery on the pancreas is the best choice right now. 

His plan is to have Scott continue the monthly Sandostatin injections, which help to keep these types of tumors from growing. To monitor tumor growth Scott will have a CT scan of the chest and an MRI of his abdomen every three months. He will also have an MRI of the brain in the next couple of weeks to rule out any pituitary tumors. 

If the tumors grow, then the oncologist would like for Scott to get a targeted radiation treatment only available in Europe and Houston, Texas. This treatment is only offered through clinical trials in the U.S. and is quite costly, so it is our hope that Scott can do well on the Sandostatin. When the treatment wins FDA approval it will be covered by insurance. That's a bridge to cross in the future. 

We are so happy to have a break from treatments and surgeries. Scott is enjoying being back at work, surfing, gardening and chasing after the little boy.

2 comments:

  1. It's good Scott doesn't have to undergo the pancreas surgery, but are there any side effects to the Sandostatin? Hopefully he's in no pain and his energy is high.

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  2. Dear Pam, We're keeping Scott (and you all) in loving prayers. Praying for healing and comfort. Love, Cher and Steve xoxo

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